LGMD2A/Calpainopathy Registry

We are pleased to announce the launch of the LGMD2A/Calpainopathy Registry! The LGMD2A/Calpainopathy Registry creates a platform for patients around the world to share their perspectives about and experiences with Calpainopathy, a disease that causes muscle weakness and wasting. Calpainopathy currently has no cure. Designed with the input of scientists and patients, this global resource will provide data for researchers to use to advance drug development and treatment options to help improve Calpainopathy patient care. Join now and let your data tell your story. LGMD2A.iamrare.org

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